We feel very lucky to have been able to spend precious moments with our adorable son. We were able to get him baptized on Wednesday night. We were also able to hold him and tell him how much we love him. I was rocking him in my arms when he passed. He went so peacefully. After he left for heaven, I was able to help the nurse bathe him and get him dressed. We had a photographer come from an amazing volunteer organization called Now I Lay Me Down to Sleep. She took lots of pictures of sweet Sticky Bean, so we're looking forward to seeing those. They are an amazing organization. http://www.nowilaymedowntosleep.org/
We are meeting with a funeral home tomorrow to discuss our options. I have had a number of friends ask what they can do for us. We would love for you to keep us in your prayers and thoughts. Also, someone at the hospital suggested that in lieu of flowers, friends and family could donate to PKD research. There is a walk for PKD research in October and we have a team participating. We would be honored if you would like to donate to Team Sticky Bean. Below is our team home page, if you are interested.
Below are some pictures of our sweet baby boy that we snapped with our cell phones.
|Mom with Baby Rex|
|Daddy and our little fighter|
|The world's sweetest San Diego Chargers fan|