Sticky had an ultrasound this morning and everything was status quo again - yay! He was pretty quiet during the ultrasound, but he's been moving a lot this afternoon. I guess he was sleepy. Sadly, his kidneys are approaching 12 cm! It is just amazing to me that such a small baby can have such giant kidneys.
However, the perinatologist seemed optimistic about his lung maturation and thinks the major problem will be his kidneys not leaving room for the lungs to expand. The good news is there are ways to fix the kidney problems, but no way to fix a lung maturation problem. As always, thank you for all the continued prayers and/or positive thoughts. They mean SOOO much!
This blog is to chronicle our journey with our baby who was diagnosed with ADPKD in utero.
Thursday, June 30, 2011
Tuesday, June 28, 2011
ECHO - June 28th
Sticky had an echocardiogram this morning and everything was status quo! He seems to be smoothly sailing towards the finish line now. They also checked his arteries in one side of his lungs and they looked normal. This doesn't necessarily tell us about his lung function at birth, but I'll take it! They couldn't check the other side because he was being too wiggly. We only have one more ECHO before his delivery! The cardiologist said she'll be there when he is born and that he'll be surrounded by lots of doctors. This makes me very happy!
Other than that, his head is right at the top of my belly so I can see and feel him bopping up and down. It's pretty adorable.
Thank you for all of your continued prayers and/or positive thoughts!
Other than that, his head is right at the top of my belly so I can see and feel him bopping up and down. It's pretty adorable.
Thank you for all of your continued prayers and/or positive thoughts!
Monday, June 27, 2011
Ultrasound - June 27th
Sticky had an ultrasound this morning and everything was status quo! He practiced breathing and moved around enough (I think he was a bit sleepy though).
In other news, I have been talking to other kidney moms about what to expect at birth and have been getting some great advice and shared experiences. I have to admit that I'm very anxious about giving birth and then Sticky being immediately whisked away to the NICU and having to wait hours to see him! After hearing from the other moms who have been through it, I feel much better (or at least more prepared as to what to expect!)
Thank you for your continued prayers and/or positive thoughts. We appreciate them more than you know!
In other news, I have been talking to other kidney moms about what to expect at birth and have been getting some great advice and shared experiences. I have to admit that I'm very anxious about giving birth and then Sticky being immediately whisked away to the NICU and having to wait hours to see him! After hearing from the other moms who have been through it, I feel much better (or at least more prepared as to what to expect!)
Thank you for your continued prayers and/or positive thoughts. We appreciate them more than you know!
Friday, June 24, 2011
Ultrasound - June 24
Sticky was a very good boy today! Despite being 9AM on a Friday, Sticky practiced breathing and moved around. He didn't even need the magic buzzing device. I was very proud of him!
In other news, yesterday I found out that the nephrologist I had been working with will be on vacation when Sticky is born. This stressed me out a little bit! She called me this morning and was VERY nice. She assured me that her partner is very capable and would get all of her notes on Sticky's case. She also reiterated that all decisions regarding Sticky will be a team effort and that Sticky is ultimately in charge. I felt much better after our conversation. Sometimes it's just hard for me (Mrs. Planner) to deal with so much uncertainty!
Thank you so much for your continued prayers and/or positive thoughts. We cannot thank you enough!
Have a great weekend.
In other news, yesterday I found out that the nephrologist I had been working with will be on vacation when Sticky is born. This stressed me out a little bit! She called me this morning and was VERY nice. She assured me that her partner is very capable and would get all of her notes on Sticky's case. She also reiterated that all decisions regarding Sticky will be a team effort and that Sticky is ultimately in charge. I felt much better after our conversation. Sometimes it's just hard for me (Mrs. Planner) to deal with so much uncertainty!
Thank you so much for your continued prayers and/or positive thoughts. We cannot thank you enough!
Have a great weekend.
Thursday, June 23, 2011
Let the countdown begin!
I just heard from my doctor's office and Sticky's c-section is scheduled for July 20th at 9:30 AM.
We effectively lost sweet Baby Pher on July 20th, 2010, so I take it as a good sign. We're going to turn a very sad day into a very good day! Also, the 20th is a good date in my family. My brother, my cousin and I were all born on the 20th of the month. And my paternal grandfather's birthday (who is in heaven watching over Sticky) was July 20th!
So, Sticky you just stay put until your scheduled arrival date.
Thank you for all of your continued prayers and/or positive thoughts. Sticky will be here in less than a month!
We effectively lost sweet Baby Pher on July 20th, 2010, so I take it as a good sign. We're going to turn a very sad day into a very good day! Also, the 20th is a good date in my family. My brother, my cousin and I were all born on the 20th of the month. And my paternal grandfather's birthday (who is in heaven watching over Sticky) was July 20th!
So, Sticky you just stay put until your scheduled arrival date.
Thank you for all of your continued prayers and/or positive thoughts. Sticky will be here in less than a month!
Tuesday, June 21, 2011
Ultrasound - June 21st
I think Jon is Sticky's good luck charm! Jon was able to go to the appointment today and Sticky was a breathing machine. As soon as the tech touched the wand to him he was already practicing breathing. He's such a good boy!
They did a growth measurement today and his weight estimate was 9lbs and 7oz! Obviously this is inflated because of his huge belly, but he's definitely not a petite flower. I guess this explains why I'm so sore!
The doctor warned us that with a baby this big, my body might think it's full term so I need to be aware of any pre-term labor signs. Other than that, we are status quo! They are planning to schedule my c-section later today, so I should have a tentative birthday date soon.
Thank you so much for all of your continued prayers and/or positive thoughts for Sticky Bean! We really appreciate them!
They did a growth measurement today and his weight estimate was 9lbs and 7oz! Obviously this is inflated because of his huge belly, but he's definitely not a petite flower. I guess this explains why I'm so sore!
The doctor warned us that with a baby this big, my body might think it's full term so I need to be aware of any pre-term labor signs. Other than that, we are status quo! They are planning to schedule my c-section later today, so I should have a tentative birthday date soon.
Thank you so much for all of your continued prayers and/or positive thoughts for Sticky Bean! We really appreciate them!
Friday, June 17, 2011
Ultrasound - June 17, 2011
Sticky has his usual ultrasound this morning. He was moving all around, but did not practice breathing. Fortunately the doctor decided that we did not have to go to the hospital for a repeat ultrasound this time (yay for saving $250!!) She said to just keep count of his movements this weekend and call if Sticky seems to be less active.
Please keep Sticky in your thoughts and prayers - thanks! Have a great weekend.
Please keep Sticky in your thoughts and prayers - thanks! Have a great weekend.
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