On August 21st, 2011 (one month after Rex's death), Jon and I had a private memorial on the beach. It was a wonderful occasion and allowed us to formally say goodbye to our sweet little boy. We lit candles, said prayers and recited a poem. We also read (or tried to read through our tears) letters to Rex from us and his grandparents.
We invited our wonderful NILMDTS photographer, Angela Sacket of Loving Legacy Photography (http://www.lovinglegacyphotography.com/) to capture the ceremony on film. Below is a link to a slide show of some of the shots from that evening.
Sticky Bean's Memorial
This blog is to chronicle our journey with our baby who was diagnosed with ADPKD in utero.
Wednesday, September 28, 2011
Monday, September 26, 2011
Team Sticky Bean
On Friday night, my parents hosted a Charity Wine Tasting to help raise money for Team Sticky Bean. They had a wonderful turn out and raised over $2800! We really appreciate all of our family and friends who came out to support the PKD foundation!
Here are some pictures from the event (taken by Baby Rex's great aunt Mary Anne)
Here are some pictures from the event (taken by Baby Rex's great aunt Mary Anne)
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Sticky's Grandpas! |
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Back of the "Team Sticky Bean" shirts |
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Generous gifts donated for the silent auction |
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Sticky inspired so many people! |
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A toast to the cure! |
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Last minute bids |
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Sticky's beautiful grandmothers! |
Thursday, September 8, 2011
In Memory
My Eckerd colleagues will be honoring Baby Rex by planting a tree on campus. I feel so lucky to have such an amazing work community. I look forward to being able to walk by Rex's tree every day!
Here is the plaque that will be underneath his tree. A perfect tribute to our little fighter!
Here is the plaque that will be underneath his tree. A perfect tribute to our little fighter!
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